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  Nothing About Us Without Us

   Developing Innovative Technologies
            For, By and With Disabled Persons

    David Werner

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CONTENTS                               

bulletAbout this book
  p. 000

INTRODUCTION:  Disabled Persons as Leaders in the Problem-Solving Process

bullet Introduction 1
  p. 001
bullet Introduction 2
  p. 010
bullet About
the PROJIMO Team
  p. 020

PART ONE: THE PURPOSE OF SPECIAL SEATING: FREEDOM AND DEVELOPMENT, NOT CONFINEMENT

bullet INTRODUCTION
A Child is Not a Sack of Potatoes p. 025
bullet CHAPTER 1
A Seat for Carina to Dress Herself p. 033
bullet CHAPTER 2
Seats with Changing Positions to Meet Jazmín's Different Needs p. 037
bullet CHAPTER 3
Measuring and Fitting Devices for Children Who Need a Special Seat or Standing Aid p. 041
bullet CHAPTER 4
Positive Seating to Help Toño See, and Edgar Learn to Walk p. 047
bullet CHAPTER 5
A Tire Seat to Reduce Celia's Spasticity p. 057
bullet CHAPTER 6
A Mudguard For Dalia p. 059
bullet CHAPTER 7
Listening to Rufina Listen to Her Body p. 061
bullet CHAPTER 8
Paper-Based Aids: Seating and Standing Aids for Cruz and Kim, and a Helmet for Edgar p. 065
bullet CHAPTER 8b
(Page 2) p. 070
bullet CHAPTER 9
Mud Seats and Other Aids for Nadu, in India p. 075
bullet CHAPTER 10
A Wheelchair Seat Helps Dora Overcome Chronic Depression p. 077

PART TWO: CREATIVE SOLUTIONS FOR WALKING AND FOR LEG AND FOOT PROBLEMS

bullet INTRODUCTION
New Approaches to Meeting Common Problems p. 081
bullet CHAPTER 11
Leg Braces for David: The Need to Solve Problems as Equals p. 083
bullet CHAPTER 12
Leg Braces for Noé: From Old Plastic Buckets to Polypropylene p. 089
bullet CHAPTER 13
Plastic Braces to Help Stabilize Carla's, Neto's, and Robi's Knees p. 093
bullet CHAPTER 14
Adjustable Plastic Braces to Correct Raúl's Club Feet p. 097
bullet CHAPTER 15
A Foot-Positioning Device for Taking Plaster Casts p. 103
bullet CHAPTER 16
Plastic Bottles to Correct Margarita's Turned-In Feet, and to Heal Jesús' Pressure Sore p. 105
bullet CHAPTER 17
Twist Hoses (and Foot Tubes) to Help Diego Walk p. 109
bullet CHAPTER 18
A Low-Cost Stump-Cast Clamp for Making Artificial Legs p. 113
bullet CHAPTER 19
The Mukti Limb: Fast, Cheap Legs from Plastic Pipe p. 119
bullet CHAPTER 20
A Wooden Skeleton for Teaching Functions of Muscles and Bones p. 125

PART THREE: OVERCOMING DIFFICULTIES WITH BODY FUNCTION THAT RESULT FROM DAMAGE TO THE NERVOUS SYSTEM

bullet INTRODUCTION
Creative Solutions to Personal and Situational Needs p. 129
bullet CHAPTER 21
A Back-Brace Crib and Bounce-Bed for a Baby with Severe Spinal Curve p. 131
bullet CHAPTER 22
Non-Spill Trays: A Personal Invention Shared with Others p. 135
bullet CHAPTER 23
Helping José Walk and Talk after His Stroke p. 137
bullet CHAPTER 24
Gene Invents a Writing Brace for His Paralyzed Hand p. 143
bullet CHAPTER 25
Life-Saving Innovations in Bladder Management By Spinal-Cord Injured Persons p. 147
bullet CHAPTER 26
Leg Splints and a Standing Post to Stop Alicia's Urinary Infection p. 149
bullet CHAPTER 27
Cushions and Pressure Testers to Help Avoid Pressure Sores p. 155
bullet CHAPTER 28
Julio Uses His Spasticity to Prevent Pressure Sores p. 165

PART FOUR: WHEELS TO FREEDOM

bullet INTRODUCTION
Designing Mobility Aids to Meet Individual Needs p. 169
bullet CHAPTER 29
Making Wheelchairs from Trash: Innovations in War-Torn Angola p. 173
bullet CHAPTER 30
Evolution of the Whirlwind Wheelchair p. 183
bullet CHAPTER 30b
(Page 2) p. 192
bullet CHAPTER 31
For Long Runs on Lousy Roads: A Hand-Pumped Tricycle p. 197
bullet CHAPTER 32
Mobility Aids, a Walking Toilet, and a Seeing-Eye Person for Carlos p. 207
bullet CHAPTER 32b
(Page 2) p. 217
bullet CHAPTER 33
Bars for Beno, and a Walker that Turns into Crutches for Lino p. 219
bullet CHAPTER 34
A Front-Wheel-Drive Wheelchair for Aidé: Lessons Learned from an Experiment that Failed p. 221
bullet CHAPTER 35
A Gravity-Powered Elevator for Wheelchair Accessibility p. 227
bullet CHAPTER 36
Paraplegics Who Walk Where Wheelchairs Won't Enter (India) p. 231
bullet CHAPTER 37
Martín Builds a Jointed Gurney to Keep His Hips from Stiffening p. 235
bullet CHAPTER 38
Osvaldo: A Triplegic Boy with Many Challenging Needs p. 239
bullet CHAPTER 39
A One-Hand-Drive Wheelchair for Che: A Challenge for Martín p. 253

PART FIVE: INNOVATIVE METHODS AND APPROACHES

bullet INTRODUCTION
People Helping and Learning from Each Other as Equals p. 255
bullet CHAPTER 40
Ways Disabled Persons Win Community Respect p. 259
bullet CHAPTER 41
Karate for Fun (and Therapy) for Children with Cerebral Palsy p. 263
bullet CHAPTER 42
Need for Independent Living and Women's Liberation: Conchita's Story p. 265
bullet CHAPTER 43
Disabled Gangsters Help a Child with Muscular Dystrophy p. 267
bullet CHAPTER 44
Learning New Ways to Work in the Non-Formal Economy p. 275

PART SIX: CHILD-TO-CHILD: INCLUDING DISABLED CHILDREN

bullet INTRODUCTION
Helping Children Respond Creatively to the Needs and Rights of the Disabled Child p. 285
bullet CHAPTER 45
From Beneficiaries to Facilitators: Ramona, Jesús, and Child-to-Child p. 295
bullet CHAPTER 46
An Unusual Friendship: Manolo and Luis p. 301
bullet CHAPTER 47
Vania and Jésica: A Ten-Year-Old Doctors a Younger Child p. 307
bullet CHAPTER 48
Four Siblings with Muscular Dystrophy Lead a Program for Disabled Children p. 311
bullet CHAPTER 49
Playmates as Therapists: Helping Fernando Learn New Skills p. 319
bullet CHAPTER 49b
Playmates as Therapists: Helping Fernando Learn New Skills p. 325
bullet CHAPTER 50
Mentally Handicapped Girls Assist Multiply Disabled Children: Outcome of a CBR Training Course in Brazil p. 333

 

AFTER-THOUGHTS: Communication as if ALL People Matter p. 339
bullet Resource List 1
Programs and Organizations Promoting Innovative Technologies  p. 341
bullet Resource List 2
Reading and Teaching Materials  p. 343
bulletINDEX
   p. 345

Any parts of this book, including the illustrations, may be copied, reproduced, or adapted to meet local needs, without permission from the author or publisher, provided the parts reproduced are distributed free or at cost, not for profit. For any reproduction with commercial ends, permission must first be obtained from the author or HealthWrights. The author would appreciate being sent a copy of any materials in which text or pictures have been used.

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Nothing About Us Without Us

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