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  Nothing About Us Without Us

   Developing Innovative Technologies
            For, By and With Disabled Persons

    David Werner

339

After-Thoughts:
Communication as if ALL People Matter

The Communications Age: Still a Need for Simple, Clear Alternatives

Some say we now live in The Age of Global Communications. The owners and decision-makers of our shrinking earth communicate with one another, world-wide, through computers, fax machines, and electronic mail (e-mail). They say that those who do not master the New Communication Technology will be left behind.

In fact, much of humanity has already been left behind. Today there are more hungry children in the world than ever before - not because of a lack of food and resources, but because of the growing inequality of distribution of resources. The model of global development based on greed rather than need has led to a brutal concentration of wealth. Today the world's 477 richest people (billionaires) have a total wealth greater than that of the poorest half of humanity. Most disabled people belong to this poorest half.

For the poorer half of humanity, communication tools remain basic. Most of the world's people - including most disabled people - have no access to computers, e-mail, or the Internet (a world-wide electronic information-sharing network). They still communicate with one another simply and directly, sharing information through spoken words, signs, pictures, gestures, and expressions.

Where there is no doctor - a village health care book    Helping health workers learn - a book of methods, aids, and ideas for instructors at the village level    Disabled village children - a guide for community health workers, rehabilitation workers, and families

This book has been written for disabled people and those concerned for their well-being. Most such persons lack costly communications equipment. They learn primarily through spoken and printed language, pictures, and direct hands-on experience.

One of my own biggest challenges as a health educator and disabled activist has been to demystify medical and technical knowledge and present it so that persons with little formal education can use it. The books that have grown out of this process include Where There Is No Doctor, Helping Health Workers Learn, and Disabled Village Children.

In preparing these books, my co-workers and I have tried to follow a few basic guidelines for making them readable, interesting, and useful, including for those who do not have a lot of practice reading. These guidelines are on the following page.

340

Suggestions For Effective Information-Sharing in Print

A photograph of a child with a plaster cast on his leg. Simple line drawings of thigh bone.

1.Use lots of pictures. A picture is worth 1000 words.

*  Simple line drawings are very useful for showing ways to do things. Try to make drawings of people realistic and attractive.

*  Photographs add life. They help to make messages and alternatives more believable.

*  To hold the attention of those who do not read much, try to use pictures on almost every page. Persons who are not used to using an index can flip through the pages, looking at the pictures to find the topic they want.

 

Use "hip" instead of "pelvic girdle" and use "artificial leg" instead of "prosthesis leg".

2.Keep language simple. Avoid specialized terms and big words. Say things in the day-to-day language of ordinary people. If you do use a less familiar term, explain it when you first use it. A list explaining difficult words may help.

 

A mother explain the book to her girl: It says 'Stretch the foot like this.'

3.Keep sentences and paragraphs short. Try to limit sentences to about 20 words. Look for ways to break longer sentences into shorter pieces. Also break up long paragraphs.

 

 

 

 

Village people are interested in disabled persons.

4.Add human interest. Use personal stories and real-life examples. In presenting information and innovative approaches, give examples of how persons have used and adapted them. Include enough details so the persons described seem human and interesting.

 

 

 

Speak to them in their terms and on their terms, as equals.

5.Present information simply, but not simplistically. People with little formal schooling are just as smart as anyone else. Often they have more skills for meeting basic needs (for example, producing food) than do scholars. Speak to them IN their terms and ON their terms, as equals. Do not talk down to them. They can understand complex ideas if you start with what they know, and build on that.

 

Listen to the word of users - "It hurts me here!"

6.Develop and test the materials with a number of intended users. Be sure to include users or readers who have little formal education, or know least about the subject matter. Ask them if they understand it, enjoy it, and find the information or ideas important and useful. Ask what they like most, and what they like least about it, and if they have any suggestions for making it better.
 

7. Use bolding, BIG PRINT, italics, shading and boxes to emphasize important points. Also use "bullets" and arrows.

341-342

Resource List 1

Programs and Organizations Promoting Innovative Technologies

This is a partial list of organizations and programs that help in developing assistive equipment at the community level. Included are programs that run training workshops or welcome apprentices who want to exchange ideas and explore "appropriate technologies." Some associations or parent organizations are listed that may be able to provide more local information and addresses in different countries. Those that contributed to the information in this book are marked with an asterisk (*).

Action on Disability and Development (ADD), 23 Lower Keyford, Frome, Somerset BAI 1 4AP, UK. Tel: (44-1373) 473064. Contact: Michael Albu, ADD Mobility Service. Community rehabilitation programs in several countries. Help in starting workshops for wheelchairs, tricycles and other equipment; advice on designs, training, administration. African Medical and Research Foundation (AMREF), Wilson Airport, PO Box 30125, Nairobi, Kenya. Network of community health programs throughout Africa.
* Appropriate Health Resources and Technologies Action Group (AHRTAG), Farringdon Point, 29-35 Farringdon Road, London EC1M 3JB, UK. Tel: (44-171) 2420606. Contact: Ann Robins, Disability and Rehabilitation Unit. Information and resources on primary health care and rehabilitation in the Third World. * Appropriate Mobility International, PO Box 3198, 2601 DD Delft, The Netherlands. Tel/Fax: (31-15) 2 12 22 70. Contact: Joep Verweij. Design and documentation of tricycles and other mobility aids.
* Appropriate Technology International, 1331 H Street NW, Washington DC 20005, USA. Advice on setting up workshops and training for Whirlwind wheelchairs. Arigel's Haven Society, CPO Box 2840, Seoul, Korea. Contact: Roh Jae Dong. Walking and seating aids.
* CBR Centre, PPRBM, JI Lu, Adisucipto Km7, Colomadu, Solo 57176, Indonesia * Centre for the Rehabilitation of the Paralyzed, PO CRP, Chapain, Savar, Dhaka, 1343 Bangladesh. Tel: (880-2) 06226 464/465; Fax: (880-2) 837969. Contact: Valerie Taylor. Training of orthopedic technicians and setting up small workshops. Many innovations in wheelchairs, trollies, and other aids.
CEPRI (Center for the Promotion of Integrated Rehabilitation, Managua, Nicaragua), Apto 5765, Managua, Nicaragua. Tel: (505 2) 663608. A program of families of disabled people. Good self-help manuals in Spanish for and by disabled, especially spinal-cord injured, persons. * Christian Medical College, Rehabilitation Center, Vellore 632004, Tamilnadu, India. Contact: Dr. S. Bhattacharjee. Wide variety of innovative aids, wheelchairs, protective cushions for spinal-cord injured persons. Re-training in daily skills for rural life.
Christoffel Blindenmission, Nibelungenstrasse 124, D-6140 Bensheim 4, Germany. Africa Regional Office-East, PO Box 58004, Nairobi, Kenya. Low-cost treatment of eye disease, spectacle-making, and optical equipment. * CISAS (Center for Health Information and Advisory Services) Apto. 3267, Managua, Nicaragua. Tel: (505-2) 661-662; Fax: (505-2) 224-098; e-mail: cisas@ibw.com.ni. Contacts: Maria Zuniga, Martín Reyes. Promotes community based health care and rehabilitation throughout Nicaragua. Also Child-to-Child involving disabled children in much of Latin America.
* Colombo Friend-in-Need Society, 171 Sir James Peiris Mawatha, Colombo 2, Sri Lanka. Contact: Mrs. Swarna Ferdinand, Project Manager, Jaipur Foot Programme. Artificial limbs. The Disabled Living Centres Council, 380-384 Harrow Road, London W9 2HU. Contact: Tony Travis. Resource centre for information, and trials of equipment.
* Disabled People International, 101-7 Evergreen Place, Winnipeg, Manitoba, R3L 2T3, Canada. International association of national organizations of disabled persons. Tel: (204) 287-8010. Many country programs are involved in community based rehabilitation and some in innovative technologies. * Economic and Social Commission for Asia and the Pacific (ESCAP), UN Building, Rajadaminern Ave. Bangkok 10200 Thailand. Tel: (662) 2881234; Fax: (662) 2881000. Contact: San Yuenwah. Workshops, documentation, and networking on assistive devices.
Guyana Community Based Rehabilitation Programme, c/o European Commission, PO Box 10847, Georgetown, Guyana. Tel: (592 2) 42249. Fax: (592 2) 62615. Contact: Brian O'Toole. International training programs in CBR and child development. Good teaching materials. * Handicap International, Home office, 18 rue de Gerland, 69007 Lyon, France. Tel: (933 47) 861-1737. Contact: Jean-Baptiste Richardier. Orthopedic and rehabilitation equipment; designs, advice.
* Handicap International - India, No.4 Ghandi Street, Colas Nagar, Pondicherry 605001, India. Contact: Xavier Mariadoss. Plastic-bucket braces. Handicap Internationai - Pakistan, Ahmadzai Colony, Sariab Road, Quetta, Pakistan. Contact: Pascal Simon. Limbs, wheelchairs, seating and walking aids.
* HealthWrights, P.O. Box 1344, Palo Alto, CA 94302, USA; E-mail: healthrights@igc.apc.org. Web site: http://www.healthwrights.org. Contact: David Werner. Development and publication of educational and self-help materials for community based health care and rehabilitation. Works with PROJIMO (see below) on innovative assistive equipment. ILO, Center for International Cooperation and Appropriate Technology (CICAT/DUT). Stevinweg 1, PO Box 5048, 2600 GA Delft, Netherlands. Contact: Joep Verweij. Information on hand-power tricycles, worldwide. Detailed instructional materials with fine computer-drafted drawings.
* Institute of Child Health, Department of Growth and Development, 30 Guilford Street, London WCIN 1EH. Tel: (44-71) 242-9789. Information and research on planning health care. Course for trainers of Community Based Rehabilitation. Intermediate Technology Information Ring, Nudestraat 4, 6701 CE Wageningen, The Netherlands. Information on assistive devices and opthalmologic instruments.
* Intermediate Technology Publications Ltd, 103-105 Southampton Row, London WC1 B 4HH, UK. Tel/Fax: (44-171) 436-2013. Publishing and supply of books on appropriate technology, tools, and workshop equipment. * International Commission on Technology and Accessibility (ICTA) Infomation Center, Box 510, S-162 15 Vallingby, Sweden. Tel: (46 8) 620-1700. Contact: Tomas Lagerwall. Documents appropriate assistive technologies. Conducts seminars and hands-on workshops in Africa and Asia. Useful publications on assistive devices.
The Jairos Jiri Foundation, PO Box 1529, Bulawayo, Zimbabwe. Calipers, walking and sitting aids, wheelchairs, low-cost adaptations for children. * Liliane Stichting Fonds, P.O. Box 75, 5250 Vlijmen, Holland. Tel: (31) 7351-19029; Fax: (31) 7351-17354. Contact: Kees van der Broeck. Helps cover disability-related costs for individual children in poor countries. Also helps cover some costs of community programs for disabled children.
* Mobility India, c/o The Association of the Physically Handicapped (APH), Hennur Road, St. Thomas Town, Lingarajapuram, Bangalore, 560084, Karnataka, India. Tel: (91-80) 5475165/or 5470390. Contact: Chapal Khasnabis (Mobility India), or N.S. Hema or D.M. Naidu (APH). Local production and training in high quality assistive and orthopedic aids. * Mukti, 93 Loyds Road, Madras-600 014 India. Tel: (91-44) 477498. Contact: Meena Dadha. Runs mobile limb-making clinics to villages. Make low-cost "Mukti limbs" out of plastic pipe, with Jaipur feet.
Norwegian International Disability Alliance, P.O. Box 9218 Gronland, 0134 Oslo, Norway. Tel: 2217 4647; Fax: 2217 6177. email: srimapost@sbs.nida.msmail.telemax.no.
Contact: Harald Lundqvist. Links with many disability groups and programs in Norway and beyond doing advocacy and innovative work.
* People Potential, Plum Cottage, Hattingley Road, Medstead, Alton, Hampshire, GU34 5NQ, UK. Tel: or Fax: (01420) 563741. Contact: Ken Westmacott. Design of aids for disabled persons; training in low-cost production of wide range of rehabilitation aids, including appropriate paper-based technology (APT).
* PROJIMO (Program of Rehabilitation Organized by Disabled Youth of Western Mexico). Apto. Postal 9, San Ignacio, Sinaloa, 82900, Mexico. Contact: Mari Picos and Conchita Lara. Community rehabilitation program. Disabled craftspersons design and make a wide range of assistive equipment. Peer counseling. Workshops and occasional short courses. Rehabilitation and Limb Centre, K.G. Medical College, Lucknow, India. Contact: Prof. M.K. Goel. Limbs, appliances, walking and seating aids.
* Rehabilitation Centre, SMS Medical College, Jaipur 302004, Rajasthan, India. Jaipur Limb. Many other aids. Relevant Technology Workshops, PMB 2174, Jos, Plateau State, Nigeria. Wheelchairs, tricycles, hospital equipment.
* RESCU, 21 Harare Street, PO Box 66044, Kopje, Harare, Zimbabwe. Contact: P. Gumete, Sheltered Workshop Manager. Wheelchair design, production and supply. * Sarvodaya Economic Enterprises Development Services, 41 Lumbiri Avenue, Ratmalana, Sri Lanka. Wheelchair production. Community based rehabilitation.
* Spastics Society of Tamilnadu (SPASTN), Opposite TTTI, Taramani Road, Madras 600113, Tamilnadu, India. Tel & Fax: (91-44) 2350047. Contact: Aloka Guha. Wide variety of assistive aids and special seating. Karate for disabled children. * Stichting Demotech-Design for Self-Reliance, Postbus 303, 6950 AH Dieren, The Netherlands. Contact: Reinder van Tijen. Innovative designs for energy-saving, simple living. Gravity-lift elevator. Communication tools.
* Tahanan Walang Hagdanang (House With No Stairs), 61 Banawe Street, Quezon City, Philippines. Tel (63 2) 695-2576. Wheelchairs built by wheelchair riders. * Teaching Aids at Low Cost (TALC), P.O. Box 49, St Albans, Herts ALI 4AX. Tel: (44 1727) 853-869; Fax: 846-852. Supplier of training materials; books on health care and disability, including those by David Werner.
* Viklang Kendra Research Society, Rehabilitation Centre for the Handicapped 13, Lukerganj, Allahabad, 211001, India. Contact: Dr. Bhanerjee. Innovative appliances, limbs, and wheelchairs made from bamboo. * Volunteer Health Association of India (VHAI), Tong Swasthya Bhawan, 40 Institutional Area (Behind Qutab Hotel), New Delhi 110016, India. Tel: (91-11) 6518071-72; Fax: (91 11) 6953708. Contacts with many community rehabilitation programs throughout India. Many publications. Indian version of Disabled Village Children.
* Wheeled Mobility Center, School of Engineering, San Francisco State University, 1600 Holloway Avenue, San Francisco, CA 94132, USA. Tel: (415) 338-2878. Contact: Ralf Hotchkiss or Peter Pfaelzer. World-wide network of wheelchair designers and builders. Hands~on courses in wheelchair building in many countries. * World Health Organization (WHO), 20 Avenue Appia CH-1211 Geneva, Switzerland. Contact: Dr. Enrico Pupulin, Chief Medical Officer, Rehabilitation. Tel: (41 22) 791 3656. Fax: (41 22) 791 4874. WHO has promoted Community Based Rehabilitation in many counties, and produced many valuable resource materials.
* Worth Trust, 48 Thiruvalam Road, Katpadi 632007, Tamilnadu, India. Contact: Bos Cruz. Disabled workers produce a wide variety of assistive devices, from sophisticated to simple. Innovative research with carbon-fiber braces.

 

343-344

Resource List 2

Reading and Teaching Materials

This is a short list of writings and teaching materials about or relevant to innovative technologies for disabled persons. Many of these writings share the vision of self-determination and enablement that are encouraged in this book. For a more complete list of early writings (before 1987) on ideas and aids for community based rehabilitation, see the Reference List in Disabled Village Children (see below). For more up-to-date lists, write to AHRTAG, TALC, Handicap International, or ICTA. Their addresses can be found below in the entries marked with an asterisk (*). The addresses are also in Resource List 1, pages 341-342.

* Appropriate Paper-Based Technology. Slide show. Available from Teaching Aids at Low Cost (TALC), PO Box 49, St. Albans, Herts, AL1 5TX, UK. Price 4.50 pounds for self-mounted slides, 6.20 pounds for mounted slides. * Appropriate Technology - an essential part of a CBR programme, by Tomas Lagerwall. 1995. 21 pages, free. ICTA Information Center, Box 510, S-162 15, Vallingby, Sweden.
Asia-Pacific Disability Aids and Appliances Handbook. 1982. 84 pages. ACROD, P.O. Box 60, Curtin, A.C.T., 2605, Australia. Behold Your Body: Anatomy and Physiology Anyone Can Enjoy, Volume One, by Charlene Penner. 1996. 400 pages. Rose Bud Publishing, 17126 Mt. Woodson Road, Ramona, CA 92065, USA. US$34.95.
"Build Yourself" Plastic Wheelchair. Directions for assembly available from Spinal Research Unit, Royal North Shore Hospital of Sydney, St. Leonards, NSW 2065, Australia. * Disabled Village Children: A guide for community health workers, rehabilitation workers and families, by David Werner. 1987. 664 pages. Available in English and Spanish through HealthWrights, P.O. Box 1344, Palo Alto, CA 94302, USA., or through TALC, PO Box 49, St. Albans, Herts, AL 5TX, UK. Also available - from other sources - in French, Portuguese, and other languages. Write HealthWrights for information.

Disabled child on the gurney.

* Essential CBR Information Resources: an international listing of publications. 1996. 34 pages. AHRTAG (Appropriate Health Resources and Technologies Action Group), Farringdon Point, 29-35 Farringdon Road, London EC1M 3JB, UK.
AHRTAG also produces several basic books on low-cost aids. These include:
bulletPersonal Transport for Disabled People
bulletAlternative Limb Making
bulletHow to Make Simple Disability Aids
bulletLow Cost Aids


All these books are also available from TALC, PO Box 49, St. Albans, Herts, AL 5TX, UK.

Functional Aids for the Multiply Handicapped, by Isabel Robinault, Harper and Row, Hagerstown, MD, USA. (Mostly factory built examples, but some good design ideas.)
Guidlines for the Prevention of Deformities in Polio. World Health Organization, 1995. 1211 Geneva 27, Switzerland. Handling the Young Cerebral Palsied Child at Home, by Nancy Finnie. Dutton Sunrise, 2 Park Ave., New York, NY 10016, USA, 1975. 337 pages. Excellent, very complete information for home care, with many simple, practical aids and devices.

a cerebral palsied boy pushes mini-truck and a girl pushes a chair.

Helping Health Workers Learn, by David Werner. 1982. 632 pages. Available through HealthWrights, P.O. Box 1344, Palo Alto, CA 94302, USA. People-centered methodologies. Useful section on Child-to-Child. Independence through Mobility, A guide to the manufacture of the ATI-Hotchkiss Wheelchair, by Ralf Hotchkiss. 1985. 162 pages. Available through Wheeled Mobility Center, San Francisco State University, San Francisco CA 94132, USA.
The Jaipur above-knee prosthetic systems: fabrication manual, by M.K. Mathur. 1989. 47 pages. SMS Medical Centre, Jaipur 302 004, India. The Lever-Powered Tricycle, Manufactured in Burkina Faso. 1995. 100 pages. Handicap International, ERAC, 14, Avenue Berthelot, 69361 Lyon, cedex 07, France. Price 55 FF. Handicap International (HI) also has many excellent booklets and videos on appropriate technologies for disabled persons, including artificial limbs, braces, wheelchairs, and crutches designs. Write HI for a list.
Local Production of Appropriate Technical Aids for Disabled People, Report from a Rehabilitation International workshop in Kibwezi, Kenya. 1992. 32 pages. ICTA Information Center, Box 510, S-162 15, Vallingby, Sweden. Making Health-Care Equipment: Ideas for local design and production, by Adam Platt and Nicola Carter. 1990. 80 pages. Intermediate Technology Productions. 103-105 Southampton Row, London WC1B 4HH, UK. (Good wheelchair, convertible wheelchair-tricycle, and many other designs.)

Both sets of rear wheels are powered and are also used for steering.

A Manual: Appropriate Paper-Based Technology (APT), by Bevill Packer. Revised 1995. 120 pages. Intermediate Technology Publication , Ltd. 103-105 Southampton Row, London WC1B 4HH, UK.

Wheeled horse made of paper and glue.

More With Less: Aids for Disabled People in Daily Life, by Gery van der Hulst and others. 1993. TOOL Publications, Sarphatistraat 650, 1018 AV Amsterdam, Netherlands.

A sloping platform: his head and arms extended over the front edge.

A Plastic Caliper for Children, by Handicap International staff at its Pondicherry, India branch. Available through Handicap International, or from ERAC, 14 avenue Berthelot, 69361 Lyon cedex 07, France. Positioning the Client with Central Nervous System Deficits: The wheelchair and other adopted equipment. Andrienne Falk Bergen and others. Second edition 1985. 237 pages. Valhalla Rehabilitation Publications, PO Box 195, Valhalla, NY 10595, USA.

Two kinds of platforms make him comfort when he lies on his face and also on his back.

Promoting the Development of Young Children with Cerebral palsy: A Guide for Mid-Level Rehabilitation Worker, World Health Organization, 1993. 20 Avenue Appia, 1211 Geneva 27, Switzerland. Questioning the Solution: The Politics of primary Health Care and Child Survival, by David Werncr and David Sanders. 1997, 2oe pages, HealthWrights, P, O. Box 1344, Palo Alto, CA 943oa, USA.
Rehabilitation technology in community-based rehabilitation: a compendium, by S. Olney, T. Packe and U. Wyss. Kingston, 1994. 212 pages. Available from School of Rehabilitation Therapy, Queens University, Ontario K7L 3N6, Canada. Special Seating, by Jean Anne Zollars. Second edition 1992. 92 pages. Otto Bock Orthopedic Industry, Inc., Rehab Publications, 3000 Xenium Lane, Minneapolis, MN 55441, USA.

Raise up the table legs by blocks for his size to straighten a back-bone.

Teaching Yogasana to Mentally Retarded Persons, by Vijay Human Services. 1988. 120 pages. Krishnamacharya Yoga Maniram, 13 Fourth Cross Street, A.K. Nagar, Madras 600 028, India. Training in the Community for People with Disabilities, by Einer Helander et al. 1989. 582 pages. Available in English, French, Portuguese and Spanish. World Health Organization, 20 Avenue Appia, CH-1211 Geneva 27, Switzerland.

Pulling rope for exercise.

Tricycle Production Manual, by Annemiek van Boeijen, Joep Verweij, et al. 1996. 110 pages. CICAT/DUT Stevinweg l, PO Box 5048, 2600 GA Delft, Netherlands. Joep Verweij and friends have also put together an excellent Inventory of Tricycle Models with examples and photos from around the world.

A manual book for tricycle production.

For additional tricycle design resources, see page 202.

UPKARAN: A manual of aids for the multiply handicapped. 106 pages. Spastics Society of India, Upper Colaba Road, Opposite Afghan Church, Colaba, Bombay, 400-005 India.
We can play and move: a manual to help disabled children learn to move by playing with others, by Sophie Levitt. 1992. 56 pages. Available from TALC, PO Box 49, St. Albans, Herts, AL 5TX, UK.

 

345-350

INDEX

This INDEX lists in alphabetical order most of the topics and names included in this book:

bulletNames of PERSONS who appear in the stories are listed in the Index like this:
CARINA; CONCHITA LARA, EDGAR; MARI PICOS (first names first).
bulletNames of assistive devices and technologies appear like this:
braces, communication boards, wheelchairs.
bulletNames of different disabilities or problems are listed like this:
blindness; speech problems, spinal-cord injury.
bulletNames of "books" are listed like this:
"Handling the Cerebral Palsied Child at Home."
bulletNames of organizations are listed like this:
Handicap International, People Potential.
bulletAll other entries are listed in ordinary letters, like this:
India, land mines, women's rights.

A

Abandonment, 308, 335
ABEL, 267
Abuse by authorities, 260-261, 197
Academia de Inglés Golden Gate, 205, 315
Accessibility, 13, 199, 231, 227
Accidents, 183, 207, 239, 258, 282, 331
Action on Disability & Development, 202, 341
AFO (ankle-foot orthosis), (see Braces)
Africa, 11, 27, 65, 173, 188, 191, 199
AHRTAG (Appropriate Health Resources and Technologies Group), 202, 341
AIDÉ, 221-223
Aids and equipment, (see names of equipment. Also see Harmful devices)
Ajoya, Mexico, 1, 275, 302, 319, 338
ALAIN CANE, 178
Alcoholics-and-Drugs-Anonymous, 268
Alcoholism, 2, 268, 304, 319, 198, 307
ALEJANDRO, 197-200, 205, 261
ALICIA, 149-151, 153-154
AliMed, 101
ALONZO, 213-216
ALVALO, 260
AMELIA, 40
Amnesty International, 260
Amputation, 107, 296, (also see Legs artificial)
care of stump, 180
of hands or arms, 256, 260
from land mines, 173, 178, 180
wheelchair for person with, 189
ANDRÉS, 137-139, 330
Anemia, 77
ANGEL, 269-270
Anger, and depression, 235, 239
Angola, 135, 173-182
disabled people's organization in, 179
ANN HALLUM, 21, 23, 103, 137, 181, 292
Apprenticeship, 2, 4
"Appropriate Disability Design," 135
Appropriate Mobility International (AMI), 203-204
Appropriate paper-based technology (APT), 65-74;
instructions for, 72
paper and cardboard devices include:
bulletcarseat and back-pack seat, 74
bulletcarrying-seat, 74
bulletchair-insert, 74
bulletcushions, 157, 162-163, 188
bullethelmet, 70-71
bulletpottery, 255
bulletspecial seats, 66-68, 72, 333, 335
bulletstanding frame, 69
bulletstool, 65
bulletswing, 74
bullettoys and animals, 65
bulletwalkers, 74
Appropriate technology, 184, 257
not always appropriate, 225
Arab marketplace, 135
Arch-supports, 83
Arm rocker, for a paralyzed arm, 175, 311
ARMANDO NEVÁREZ, 20, 23, 39, 81, 98, 100, 102, 110-111, 200, 222, 258
Armrests, 59-60
Art work by disabled children, 313-3l4
Arthritis, 135, 201, 256, 294, 338
Artificial leg, (see Legs, artificial)
Asia, 28, 119, 185
"Asia-Pacific Disability Aids and Appliances Handbook," 202, 343
Assistive epuipment, (see kind of equipment)
Athetosis, (see Cerebral palsy, athetoid), aids for coping, 34, 61-62, 312
Attendant, disabled persons as, 211, 306
Attention span, improvement in, 215
Attitude of general population, 6-7
Awareness-raising, theater skits for, 278

B

Back-brace cribs, and beds, 131-132
Back-knee position, 16, 87, 89-90, 94-95, 128, 139-142
Backrests, 37, 43, 194, 196
Baker's cyst, 94
Balance, activities to improve, 139, 320
Ball games, for therapy and fun, 183, 270, 320, 328-329
Balloons,
for making paper maché toys, 65
for making pottery, 255
for pressure testing, 159-164
Bamboo,
artificial legs, 113, 180
flex foot, 5
for playground equipment, 288
Bangladesh, 4, 15, 19, 112, 156, 194
Barriers,
physical and social, 195, 333
stairs, 230
Basic health needs, 8
Basketball, 283
Bearings for wheelchairs, 184, 188
Indian ox carts, 188
rod or needle bearings, 188
used as wheels, 174, 178
Bed, for back-straightening, 132
Bed board, jointed, adjustable, 242
Bed sores, (see Pressure sores), 155-157
Bed-table, 245
Belize, 4, 43-45
BENG LINGUIST, Swedish activist, 261
BENO, 219
BEVILL PACKER, 65
BIANCA, 23, 285
Bicycle wheels, 18
Blacksmiths, 191
Bladder management, 147-148
Blindness, (see Visual disability)
Blood pressure, measurement of, 158
Board-walk balance game, 320-321
Body jacket, 131
Body language, 142, 147, 165
Bone, conversion of flesh into, 235
Bone infection (osteomyelitis), 107, 296
Book-keeping, record-keeping, 165, 280
Bounce-bed, 133-134
Bow legs, 98, 175
Bowel program to avoid accidents, 310, (also see Urine and bowel control)
Braces,
with adjustable heel bars, 140-142
to correct club feet, 97-102, 105
to correct contractures, 84, 98, 103
floor-reaction brace, 95
for back-kneeing, 89-90, 94, 140
for paraplegics to walk, 16, 232-233
for pushing the knee backward, 95
hand braces, 143-144, 146
long-leg brace, 90, 95-97, 100, 310, 336
metal brace, 83, 95, 97, 336
muscle-assist brace, 96
night brace, 99, 336
plaster molds for, 102
plastic bucket braces, 89-90, 175
plastic cups used for braces, 16, 82
plastic pipes for, 91
plywood, adjustable braces, 84
polypropylene plastic brace, 16, 84-88, 93-96, 98-102, 142, 154, 271
pre-molded components, 91, 101
telescoping brace, 101
tricks for putting on, 127
wooden forms for making, 91
Braille, 5, 295, 299, 313
Brain damage, 130, 207, 291, 253, 335
Brazil, 4, 162, 164, 262, 333-336
Breathing difficulties, 78, 311
Broken bones (fractures), 149, 239
BRUCE CURTIS, 23
Buckets, plastic, (see Plastic buckets)
Bullet wounds, 97, 165, 253, 260-261, 271, 278-279, 308
Burkina Faso, Africa, 202
Burundi, Africa, 11, 27
Business skills, 280

C

CACHITO, 311, 313
Calipers (see Braces), 83
Cambodia, 115-116
Cameroon, 199
Campaign to Protect Turtles, 313
Canada, 173, 296
Canes, 139, 174
Capoeira, 262
Car with hand-controls, 312
Cardboard aids, (see Appropriate paper-based technology), 66-74
CARINA, 33-36
CARLA, 93
CARLOS, 207-218, 222-224, 294
Carpentry skills, (see work, carpentry)
Cast-holding clamp, 102, 115-116
Caster wheels, 53, 183, 185-186, 223, 247
Casting of foot, aids for, 89, 141
Castor oil catheter lubricant, 233
Casts, serial, (see serial casting)
CATA, 293
Caterpillar for teaching to count, 331
Catheterization, 147-148, 197, 240
castor oil lubricant, 233
CBR, (see Community Based Rehabilitation)
"CBR News", 136
CBR Training Course in Brazil, 333
CECILIA RODRIGUES, 21, 100, 214, 278, 281
CELIA, 57
Center for International Cooperation and Appropriate Technology, 204
Center for Rehabilitation of the Paralyzed (CRP), 15, 19, 112, 156, 194, 341
Central America, 4, 33
Cerebral palsy, 12, 27, 32-33, 150, 262, 277-278, 288
athetoid, 34, 61, 93, 312
diplegic, 89
floppy (flaccid, low muscle tone), 34, 40, 47-49, 54, 56, 66
seats for, (also see Special seats), 26-40, 47-51, 55-64
spastic, 225
problems with dressing, 127
walking aids for, 53, 93, 312
Che, 253, 278
Checkerboard, children making one, 245
Chepa 23, 149
Child care, 338
Child development, 30
Child-to-Child, 281, 285-332, 334, 338
disabled children helping each other,
bulletCarlos and Alfonzo, 217-218
bulletManolo and Jorge, 304-306
bulletManolo and Luis, 301-303
bulletManuel and Fernando, 320-332
bulletMaría and Gustavo, 337
bulletMiguelito and Teresa, 294
bulletVania and Jésica, 307-310
Children as rehab helpers, 46, 66, 69, 213, 289, 292, 294, 302, 306, 320
Children, not sacks of potatoes, 26, 334
Children's Toy-Making Workshop, 290, 305, 319
China, 186
CHIRO, 300, 317-318
CHITO, 320, 322-324
CHON, 23, 70
Christian Medical College, India, 231
Christmas dinner for lonely old folks, 259
Circle drawer, for wooden wheels, 177
CISAS (Center for Health Information and Advisory Services), 286, 295, 341
CLETO, 256
Club feet, 90, 97-102, 105, 292, 307, 340
Coconut fiber cushions, 15
Communication boards, 138, 330
Communication in print: guidelines, 339
Communicating with eyes, 335
Communicating with signs, 139, 324, 330
Community Based Rehabilitation (CBA), 2, 6, 9, 10, 13, 18, 27-28, 43, 162, 172, 265, 333, 337
Community health workers, 71, 256
Community, help from, 71
Community participation, 6
Community rehab centers, need for, 265
Community respect, winning it, 259
Compass, home-made, 177
CONCEPCIÓN, 4
CONCHITA, 3, 20, 22, 113-114, 127, 219, 265-266, 269, 280, 296, 308
Contractures,
extension-contractures, 242
of knees, ankles, and feet, 19, 52, 84, 98, 103, 125, 241, 244, 336
of hips, 35, 128, 181, 219, 241
ways to correct
bulletwith casts, 103
bulletwith boards, and on trails, 84
bulletwith braces, (see Braces)
Control for sitting and moving, 61
Cookbook-like instructions, danger of, 240
Cooking, 15
Cooperative action, 9
Coordination, ball games to improve, 328
CORDE (National Coordination for the Integration of Disabled People), 333
Corruption, 260
Craft skills, 255, 276, 278, 313
Cretinism, 216
Cruelty or kindness, 83, 269, 286
Crutch-walker, 220
Crutches, 16, 175, 181, 220, 232, 310
poorly adjusted, 181, 273
CRUZ, 66
Culturally-adapted devices, 14-19, 119
Cushions, to prevent sores, 156-157
cardboard, 65, 157, 162-163, 198
coconut-fiber, 156, 194
inner-tube, 15, 156-157, 194
Roho (air-filled), 157
testing of, 160-163
to prevent pressure sores, 155

D

DALIA, 59
Dancing, from wheelchairs, 300
DAVID WERNER, 1, 9, 13, 21-22, 83-88, 158, 231, 322, 333;
Sósimo's sketch of, 313
DAVIDICILLO, 338
Deafness, 8, 139
Dehydration, 152
Delft University of Technology, 203
Demystification of knowledge, 82, 339
Department of Human Services, USA, 261
Depression, 77, 235, 239, 241, 265
Development, greed-based and need-based, 339
Development Workshop (NGO), 173, 178
Developmental delay, 49, 57, 59, 304, 322
Devices and aids, (see kind of device or problem), (also see Harmful devices)
Diabetes, 114, 130, 268
Diarrhea, 8, 214
DIEGO, 109, 112
DINORA PERAZA, 311, 315
DIONICIO GONZÁLEZ, 23, 330
Disabilities, acceptance of, 80
Disability Rights Movement, Mexico, 261
Disabled activists, 21, 80, 261, 287, 333
Disabled gangsters, 267-268, 270-272
Disabled people as equal partners, 1, 4-5, 13, 30, 333, 339
Disabled People International (DPI), 6, 10, 13, 179
"Disabled Village Children", 1, 27, 30, 57, 84-85, 89, 147, 180, 226, 238, 242, 286-287, 334, 339, 343
Disabled women protect village doctor, 260
Discovering joy in life, 241
Discovery-based learning, 128, 286-287
Dislocation, of ankle, 86
DOLORES MESINA, 199, 261
DON CASTON, 31
DON MIGUEL, 21, 23, 201
DOÑA TOÑA, 307
Donkey, instead of wheelchair, 16
DORA, 77
DOUG, 262
Down's syndrome, 275
Dressing skills, 33-36
with quadriplegia, 166-168
Drugs, 236
drug-control efforts and troops, 260
drug trafficking, 2-3, 267-271
and violence, 2-3, 22, 235, 267
Drunkenness, 3, 198, 253, 268, 304, 307, 319

E

Early developmental activities, 292
Eating end drinking aids, 79, 146
Ecology and wildlife, 312
Economy, non-formal, 276
international free-market, 275-276
EDGAR, 49-53, 70-71
Education, 13, 296-300, 308, 311-312, 315, 319, 337
EFRAÍN ZAMORA, 23, 88, 126, 292
Egypt, 18, 188
Elbow stabillizer, 79
Elderly people, concern for, 259
Electric jig saw, 322
Elevator, gravity-powered, 227-229
EMA, 337
Employment, (see work), 13, 276
England, 23, 74
Epilepsy (fits), 70
Equal opportunity, 6, 13
Equality, the struggle for, 266
Equino-varus, (see Club feet), 105
ERNESTO NAVARRO, 23
Europe, 4, 23, 286
EVA, 131-134
Evaluation
devices for special seating, 41
devices for standing frame, 45
therapeutic activities, 273
through play with toys, 291
Exercises, 150
for an amputated leg, 181-182
children's help with, 292
to correct contractures, 84
faulty advice for, 181
to bring back flexibility, 235-236
for hip flexibility, 16, 168, 292
functional and fun, 84
leg exercises after stroke, 140
range of motion, 181, 270
truck-under-the-bridge game, 272
Ezekiel wheel, 183

F

FAGO, JOHN, 5, 115-116
Family Development Program (DIF), 261
FARAH, 18
FÁTIMA, 40
Feeling, loss of, 130, 155, 201, 239, 307
Feet, used like hands, 264, 340
that turn inward (pigeon-toed), 97, 105, 109, 325-327
FERNANDO, 319-332
Fever, 152
Finger contractures, making use of, 167
Fish-scale flowers, 312
Flex foot, 5
Flexikin, 125-126
FLORENTINO, 113
Foam plastic, uses of, (see Plastic, foam)
Foam-rubber "thongs," use of, 175
Foot-drop, 16, 86, 140, 241, 244
Foot-positioning devices,
for casting foot, 103-104
for turned-in feet, with cross-bar, 105
bulletwith plastic bottle(s), 105-106, 109
Foot protector, plastic bottle, 107
Footboard, pulled by a rope, 244
Footrests, 189, 210, 236
Foreign debt, 267
Forward-tilting seat, (see Positive seating)
France, 192, 203, 299
Freedom of movement, 31, 183
Friendships, (see Child-to-Child)
Front-wheel drive wheelchair, (see Wheelchair, front-wheel-drive)
Functions, human body, 125-128
FUNLAR, program in Brazil, 274

G

Gait training, with muscular dystrophy, 269-271
Gandhi Rural Rehab Center, 91-92
Gangsters, disabled, 267
transformation of, 268
as therapists, 270-272
Gap between rich and poor, 199, 267, 339
Garbage, as a resource, 79, 173
GENE RODGERS, 143-146
GEOFF THOMSBY, 199
GERONIMO, 334
Golden Gate English Academy, 205, 315
Goodness, seeds of, 268
GOPI, 120
GORDI, 292
GOYO, 275
Gripping, aids for, 143-144, 146, 165
Guadalajara, Mexico, 77, 268
Gumeys, (also see Wheeled cots, Trollies), 19, 78, 108, 191, 197, 241, 296, 308-309
adjustable, for standing, 149
jointed, 235-238, 246-248
one-arm drive, 246-248, 253-254
urine collection devices, 198, 237-238
Gymnastic rings, 11, 58, 306

H

Hand control,
improving, 56, 322-324, 328-329, 331
problems, 146, 166, 221
toys to develop, 290-291
Hand-eye coordination, 335
Hand-grips from ceiling, 277
Hand-rims, on inner side of wheels, 221
Hand "shoes," 175
Handicap International (HI), 92, 124, 202
Hands, paralyzed, 167
Hansen's disease (see Leprosy), 201
Hard technology, 8
Harmful exercises, 181
Harmful or inappropriate devices,
arch supports, 83
braces, 83, 91, 96-97
casts, 103
catheters, 147
crutches, 273
foot positioning, 109
parallel bars, 11
special seat, 26-28, 66, 293
stroller, 57, 59, 334
walker, 219
wheelchairs, 14, 18, 61
Head control problems, 334
checking, 37
improving, 37-38, 47-56, 133, 337
HealthWrights, viii, 301, 341, 343-344
Heel-bar brace, 142
Heel-cord stretching aids, 317-318
HELIODORO, 281
Helmets, cardboard head protector, 70
"Helping Health Workers Learn," 287, 339
Hemiplegia, 253, 278
Hemiplegic (one-arm drive) wheelchairs,
commercial type, 249
village-made, 249-250, 253-254
HERBERT EVEREST, 183
"Hidden Sisters: Women and girls with disabilities in Asia and the Pacific," 19
Hinges for bedboard, cloth and cord, 242-243
Hip,
band, 64, 97
fused (frozen), 235
hip-flexion contractures, 219-220, 241
stiffness, 35, 242-243, 246-247
stretching exercise, 220
support, 67
Holistic ("whole person") approach, 241
Holland, 199, 203
Home-making skills (cooking, cleaning, laundry), 277
Honey and sugar treatment of pressure sores, 156, 165, 242, 251-252, 308
Horse-back riding for disabled child, 303
Hostel for disabled children in Brazil, 334
Hot weather and urinary infection, 152
Hotchkiss, Ralf, (see RALF HOTCHKISS)
House With No Stairs, 17, 342
"How to Make Basic Hospital Equipment," by England and Eaves, 202
How to Use This Book, v
Human body, functions of, 125, 130, 343
Human rights abuses, and defense against, 197, 260-261
Hunger adds to disability, 9, 199, 334
Hydrocephalus (water on brain), 133, 293
Hydrogen peroxide, to clean catheters, 148
Hygiene, 59
Hypersensitivity (pain at slight touch), 241

I

Importance of listening, 83
Improving body position, wedges and supports for, 43-44, 335
Inappropriate technology, 11
Income-generation activities, (see Work)
Independence from one's own family, 265
"Independence Through Mobility," 185-188
Independent Living movement (IL), 10, 13, 172, 261-262, 265, 333
India, 4, 75, 91, 95, 119, 188, 203, 231-234, 263
Indian ox carts, roller-bearings in, 188
INEZ LEÓN, 21, 107, 140-141, 200, 209, 217, 222, 274, 278, 281
Infections, urinary, 147, 149, 152-154, 197
prevention of, 149-154
Injections, cause of disability, 107, 296, 307
Inner tubes, uses of
air cushion, 156, 194
contracture-correcting device and brace, 30, 98-99
exercises, 181-182
gripping tools, 146
muscle-assist brace, 96
rocking horse, 331
toilet, 194
writing and eating aids, 146
Innovative participatory technology, 4, 13
Institutional care, 265, 334, 337
Integration into,
schools, 287, 296-300, 337
society, 6-7, 256
Intermediate Technology International, 205
International law, 180
International Year of Child, 1979, 286
Interplast, (International Plastic Surgery), 236
Intravenous fluid (IV) tubes, 159
"Inventory of Tricycle Models," 203
Invitation to Readers, viii
Iodine, need for, during pregnancy, 216
IRMA LLAVIÓ, 21, 40, 195
ISABEL, 162

J

JACINTO, 293
JAIME TORRES, 21, 195, 200, 209, 235, 247, 277
Jaipur foot and leg, 95, 119, 121, 343
JANAKI, 112
JAVIER VALVERDE, 23, 115, 307
JAZMÍN, 37-40
JEAN ANNE ZOLLARS, 23, 30, 42
JÉSICA, 307-310
JESÚS, 105, 107-108, 154, 202, 262, 281, 295, 296-300, 317
Jigsaw puzzles, 291, 305
JOÃO, 336
JOEL, 80
JOEP VERWEIJ, 203
JOHN FAGO, 5, 115-116
JORGE, 302-306
JOSÉ ANGEL TIRADO, 205, 315-316
JOSÉ, the child, 3
JOSÉ DANIEL, 238
JOSÉ, man with stroke, 137-142, 330
JUÁN MORALES, 23, 31, 104, 210
JUDY HEUMANN, 261
JULIO PEÑA, 23, 165-168

K

Karate, 262-264, 322, 329
KENNETT and JEAN WESTMACOTT, 23, 33, 72, 74, 135, 146, 173-174, 178, 206
Kenya, Africa, 27, 191
Kidney problems, 149, 152, 197
KIM LESTER, 74
Knees,
bending backward, 16, 87, 89-90, 94-95, 128, 139-142
bowing, 175
contractures, 296, 336
knee-pads, 231, 264
problems, 93
torn ligaments, 128

L

Ladder for gait training, 325
Land mines, 173, 178, 180
Language,
keeping it simple, 340
problems in children, 33, 59, 61, 66, 75, 109, 150, 213, 319
with stroke, 137-138
testing understanding, 137-138
Latin America, 4, 119, 185, 286
Latrine, (also see Toilets), 233
Laws protecting small farmers, 267
Leaf-on-a-stick balancing act, 271
Learning, by doing, 277
from mistakes, 181, 221, 223, 277
Learning problems, 207, 319, 331
Leg and foot problems, 81-128
Leg braces, (see Braces)
Legs, artificial, 113, 119-124, 180
pre-fab, adjustable, 180
bamboo 113, 180
stump-cast clamp, 113-116
exercises to prepare for, 181-182
fiberglass and resin, 113, 117-118
great need for limbs, 180
Jaipur foot and leg, 119-120
metal and leather, 113, 118, 180
Mukti plastic pipe leg, 119, 121-124
wooden, 113, 180
Legs, elastic spiral for pigeon toes, 110
LEOPOLDO LEYVA, 23, 259, 306
Leprosy (Hansen's disease), 103, 130, 135, 146, 201
Life-enabling functions, 275
Lift (elevator), 227-229
Lifting a person with a sling, 153
Liliane Fonds, 199
Limbs, artificial, (see Artificial legs)
LINA, 284
LINO, 219-220
Listening, 33-34, 62, 226, 271
LLUVIA NEVÁREZ, 20, 23, 138, 258, 291
Look at my strengths and not at my weaknesses, 286, 295, 300
Los Pargos, 299, 311-314
Louis Braille, 5, 299
Love, sex, marriage, 175, 198, 266
Lubricants for catheters, 233
LUIS, 265
LUPITA, 211, 222-223
LUZ, her story, 17-18, 190
Lying down, aids for, (see Prone boards, Gurneys, Scooters)

M

MAGUI, 338
Mainstreaming in school, 287, 337
Maji Mazuri, 9
"Making Health Care Equipment," 205
Malawi, Africa, 206
MANOLO, 301-306, 332
MANUEL and FERNANDO, 320-325, 328-332
MANUELLA CAMPISTA, 23, 154, 322-323
Marasmus (wasted condition), 334-335
MARCELO ACEVEDO, 21, 23, 84-90, 96, 104, 113-118, 141, 220, 227, 229, 259
MARCOS, 171
MARGARITA, 105-106
MARI PICOS, 3, 20, 43, 47, 70-71, 77, 97, 109-111, 127, 133-134, 158, 258, 269, 304-305, 309, 319-322
MARÍA DE JESÚS LEYVA, 23, 274
MARIELOS ROSALES, 22, 279
Marijuana, 236
MARIO CARRASCO, 22, 38, 78, 245, 270-273, 279-280
MARTHA HEREDIA, 21
MARTÍN PÉRES, 22, 227, 235-237, 254, 268
MARTÍN REYES MERCADO, 23
MARTÍN REYES MILLÁN, 23, 71, 213
MARYBETTS SINCLAIR, 269
Massage therapy, 154, 269
Matari Valley, Kenya, 9
Mattresses, 156, 239, 242
Mazatlán, Mexico, 199, 219, 278, 299, 307, 311-315
Measles, disability caused by, 150
Measuring and fitting devices,
seats, 42-44
standing frames, 45
MEENA DADHA, 121
MEIR SCHNEIDER, 269-270
Meningitis, disability caused by, 291, 296
Mental disability, 74-75, 133, 207, 216, 221, 275-276, 301-306, 337, 339
Mentally handicapped girl assists multiply-disabled child, 337
Merry-go-round as therapy, 54
Mexico, 4, 16, 20, 116, 207, 276
and moral economic crisis in, 2, 199, 260-261, 276
independent living movement, 21
Mexico City, 85, 282
MICHAEL HEINRICH, 23, 158-159
MIGUEL ZAMORA, 20, 266, 277
MIGUELITO, 277, 294, 315
MIKE MILES, 172
Ministry of Justice, Brazil, 333
Ministry of Social Affairs, Angola, 179
MIRA, 15, 18-19, 192
Mistakes, (see learning from mistakes)
MMG O'Neil Catheterization System, 148
Mobility, (see Wheelchairs, Tricycles, Trollies, Gurneys, Scooters)
Model home with adaptations, 277
Molded bed, 131
MONA, 108, 149
MONICA ROOK, 23, 43-45
"More with Less," 146, 344
Moses, 178
Mothers of disabled children, 335
Motorcycle
for transporting wheelchair, 172
with 6 wheels, 312
Mountain climbing, in basket, 143
with braces and rocker-bottom shoes, 88
in wheelchair, 145
Mouth, used for gripping, 144-146
Mouth control, 335
Mud seats and other aids, 75-76
Mudguard on wheelchair, 59
Mukti limb, 119, 121-124
Multiple sclerosis, 77
Multiply-disabled children, 133, 207, 221, 296, 333-335, 337
Muscle imbalance, 97, 181
Muscular atrophy, progressive, 83, 277, 311-318
Muscular dystrophy, 267-273, 299-300,
children as teachers, 299, 313-318
increasing the child's physical ability, 267, 269, 273, 311
Myositis ossificans (flesh turning to bone), 235

N

NADU, 75-76
Nails, for wheel bearings, 188
Needs, identifying, 11, 33
Neglect, 150, 335
Nepal, 74, 143
Nervous system, anatomy of, 137
complications of damage to, 129
NETO, 93-94
New Legs for Nomads, 115
"Newsletter from the Sierra Madre", viii, 301
Nicaragua, 184-185, 286, 295, 297
NOÉ, 89-90
Non-spill tray, 136, 175
North American Free Trade Agreement (NAFTA), 267
Notepad, for communication, 138
for blind student, 299
"Nothing About Us Without Us," 13, 261

O

Occupational therapy, (see also specific activities), 150-151, 285, 288-289, 294, 320-331
Old tires, uses of, (see Tires, old)
OLIVER BOCK, 23, 82, 88, 301
OMAR, 32
Organization of Disabled Revolutionaries (ORD), 184-185
Organizational skills, 278, 280
Orthopedic appliances, (see Braces)
Orthosis, floor-reaction, 95
Orthotist (brace maker), 143, 301
Osteomyelitis, (also see Bone infection), 107, 296
Osteoporosis, (bone weakening), 149
OSVALDO, 21, 239-249
Otate, (bamboo-like plant), 139
Ovens, for heating plastic, 89-91
Over-protection, 32, 216, 265, 269, 304, 319
Overhead bar, to hang toys from, 39-40, 49, 55, 134, 293, 335

P

PAFUPI, 206
Pain
from arthritis, 201
functions of, 130
in paralyzed, hypersensitive hand, 241
while urinating, 153
Painting
the playground, 281
toys, for fun and therapy, 323
Paintings and art by Sósimo, 313-314
Pakistan, 91, 172
Palestine, Arab markets in, 135
Paper-based aids, (also see Appropriate paper-based technology), 65-74
Paper maché, 65, 73, 255
Parallel bars, 11-12, 93, 100, 208, 216, 219, 289
problems with, 11
Paralysis, (also see Polio, Spinal-cord injury, Cerebral palsy, Spina bifida)
of hands, 143, 165-168, 239, 253
on one side of body, 139, 165-168, 253
from stroke, 139, 278
Paralyzed arm, with hypersensitivity, 239-241, 244, 246, 248, 258, 279, 307
Paraplegia (paralysis of lower body), 165, 232, 238, 245, 265, 308
Paraplegics who walk, 16, 231-233
Parapodium (frame for walking), 80, 220
Parental domination, 304
Pargobus, 314
Pargos (organization of disabled children and youth), 299, 311-316
Participatory problem solving, 1, 82, 84-85, 242
Peer, assistance, counseling, and therapy, 3, 20, 167, 211, 268, 312
Pen-holders, aids for gripping, 143, 144, 146, 165
PENINA, 9
People Potential, 23, 74, 135, 206
PERAZA FAMILY, 311-316
"Personal Transport for Disabled People: Design and Manufacture," 202
PETER and MARIANNE WEST, 135-136
PETER PFAELZER, 185
Philippines, 17
Physical barriers, 7
Physical therapists as teachers, 21, 137, 278, 289, 292
Physical therspy, 140, 154, 292, 294
(also see Exercises), 216-218
for muscular dystrophy, 269-272, 317-318
for stroke 140
Piaxtla, Project in Mexico, 65, 84-85, 286
Picture boards and note pads, 137-138, 330
Plaster casts and molds, 89, 102-104, 114, 121
foot-positioning device, 103-104
Plastic,
bottles, to position feet, 105-106, 109
bottles, to protect feet, 107
braces (calipers), (see Braces)
buckets for braces, 82, 89, 96
buckets for seating, 29
cups for leg braces for babies, 82
foam-plastic, uses of, 79
bulletfor hand control, 79
bulletfor seats, 75, 82
bulletfor tables, 82, 179
IV tubing, 163
pipe for braces and limbs, 91-92, 121-124
plastic rivets, 126
zip-lock bag, for catheters, 148
Play therapy, 270
Playground tor All Children, 32, 54, 58, 270, 281, 288-289, 317, 319
equipment made by children, 32, 288
equipment made by a father, 317
Playground in Thailand, 54, 288
Playing ball for coordination, 328
Playmates as therapy helpers, 319-332
Plywood seat, 66
Plywood skeleton, 126-128, 336
Pneumonia, 311
Polio, 20-21, 85, 95, 261-262, 278, 292, 304
POLO RIBOTA, 22, 100, 104, 109, 214
Polyethylene pipe, for limbs, 121
Polypropylene plastic, (see Braces)
Positive public image, 257
Positive seating (forward-tilted seat), 36, 42, 47-51, 62, 225
cardboard, 68
does not always work, 54, 62
for which children, 48
Posture drooping, 40, 47-49, 54-55
Potatoes, children not sacks of, 26, 334
Pottery-making, 255
Poverty, 2, 8-9, 333
Powerlessness, 241
Pressure sores, 15, 19, 103, 105, 107, 130, 147, 155-157, 235-243, 246, 251-252, 282, 296, 307, 309
causes, 155, 158, 307-308
cushions to prevent, (see Cushions)
death from, 268
gurneys, (see Gurneys)
and nutrition, 251
prevention, 155, 161-162, 196
treatment, 239-241, 309
bulletevaluations, 252
bullethoney, 156, 165, 242, 251-252, 309
bulletpapaya "milk," 156
bulletsummary of methods, 251
bulletsurgery, 79, 236-237
Wheelchair to protect from, 78, 165, 196
Pressure testers to prevent sores, 158-164
Problem solving, participatory, 1, 82, 85, 242
PROJIMO, viii, 1-4, 20-23, 33, 38, 40, 71, 267-268
Christmas for old folks, 259
early years, 304
Prone-boards (for position and control, lying down), 343-344
Prosthesis, (see Legs, artificial)
Psycho-social disability, 3, 268
Psychological problems, 70, 77, 149, 153
Puzzle-making, 279, 291, 322
Puzzles, for learning numbers, 331
PVC pipe, for braces, 82, 91-92
Pyramids, rollers for building, 188

Q

Quadriplegia (paralysis in arms and legs), 130, 143, 165-168, 279, 282
"Questioning the Solution," 180, 344
QUIQUE, 3, 23, 268, 282

R

RAFA, 23, 245, 279
RALF HOTCHKISS, 4, 17, 23, 158, 183-190, 192-193, 195, 198, 236, 254
RAM, 232
RAMONA, 295-299
Ramps, 7, 31, 175, 230
for fun and therapy, 288, 317
Range of motion exercises, 52, 270
Rattles, 290-291
RAÚL, 97-102
RAYMUNDO HERNÁNDEZ, 23, 82, 94, 196
Record-keeping, for contractures, 125
Recreation, 13, 245, 283-284, 288-291, 294-295, 3O2-303, 306
Red Cross, 180
Rehabilitation as empowerment, 333
Rehabilitation engineering, 236
REINDER VAN TIJEN, 227
RESCU, in Zimbabwe, 187
RESNA (Rehabilitation Engineering Society of North America), 158
Rett Syndrome, 78
"Return to Life," 20, 266, 344
RICARDO, 300, 317-318
Rights of the Disabled Child, 286
Rings, gymnastic, 11, 58, 306
RITA, 16, 18
Rivets, plastic, for Flexikin, 126
ROBERTO FAJARDO, 23, 90, 256, 260
ROBI, 93, 96
Rocker, for paralyzed arm, 175, 311
Rocker-bottom shoes, 16, 87-88
Rocking horses, 58, 270
with old tires, 331
Role model, 294, 308, 310-313
Role playing, 297, 315
ROMEO, 168
Rope, as a walking aid, 218
for foot-exerciser, 244
for sitting up, 344
ROSA SALCIDO, 21-22, 153, 207, 211, 215
ROSAURA, 102
RUBÉN, 277
RUFINA, 61-62
Rural environment, 231, 275
Russia, 185

S

San Francisco State University, 236
Sand-bags, for seating, 46, 66
Sandal-making (also see Shoes, boots, and sandals), 98, 175
Save the Children Fund, 257
Saws, home-made, 174
Scholarships, 199, 261
Schools, 199, 261, 265, 319
child-to-child activities in family coops, 296, 311-312
integration into, 286-287, 296-300, 308, 311
Scissoring of legs, 93, 109-112
Scooters and scooter boards, 30, 174-175, 225, 264, 344
Seat-inserts, 30, 74, 333-334
Seating, (see Special seats)
See-saws, 58, 285, 289, 318
Seeing-eye foot, 224
Seeing-eye person, 211, 215
Self-abuse, 52, 70
Self-care, 241
Self-determination, 8, 10, 13, 266
Serial casting (to correct deformities), 97, 103, 105, 295, 307, 310
SETHI, DR. P.K., 95, 119
Sherpas in Nepal, 74, 143
SHIHAN HUSSAINI, karate teacher, 263
Shoes, boots, and sandals
adapted, 87-88, 97-98, 110, 175
lifts and wedges for, 87-88, 175
rocker-bottom, 16, 87-88
Shriners Hospital, in California, 315
Shunt, with hydrocephalus, 133
SIGI LESTER, 74
Sign language (self-taught), 139, 324
Simulation games, 286, 295, 297-298
Skate-board, 172
Skeleton, plywood, 126
Skills, learning, 6, 276, 290, (see Work)
Skin-pressure tester, 155-164
Sling, for lifting disabled person, 153
Smile factor, 273
Social acceptance, 6-7, 231, 256-261
Social barriers, 6-7, 256
Society for all, 6-7, 256
Soft technology, 8
Sore (ulcer), 107, 201 (see Pressure sores)
SÓSIMO, 299, 311-314
Spanish Language, teaching, 282
Spastic, (see Cerebral palsy)
Spasticity, 33-35, 57, 61, 89, 109, 149, 207, 221, 291, 296
activities to decrease, 150
reducing or controlling, 57, 61-64
using it for dressing and self-care, 166
using it to prevent sores, 165-167
Spastics Society of Tamilnadu (SPASTN), 75, 263-264
Special educators, 304
Special seats, 11, 24-79, 279, 335
adjustable, 31, 37-39, 49
with board to lift legs, 62-63
car-seat for child, 74
for a child with a large head, 293
child as a seat, 24
children improve a seat, 293
for dressing, 33-36
evaluation device, 41-44
examples, 29-31, 292
experimental approach, 47, 55
footrests, 45
headrests, 37-41, 293
inserted in wheelchairs, 30, 61-63, 335
mud seats, 75-76
overhead toy frames, (see Overhead bar)
paper-based, 65-68, 72-74
plastic bucket for seat, 29
positive seating, 47-51
possibilities, 29
problems with special seats, 27-28, 41, 57, 61, 66
sand bags, for sitting, 46
for stimulation, 56
tables for, (see Tables, for special seats)
thigh bands for athetosis, 64
wedges and supports for, 39, 44-45
with wheels, 24-25, 27, 30, 43, 50, 293
Speech problems, (see Language)
Spina bifida, 80, 103, 130, 219-220, 262, 293, 296
seating for, 293
Spinal curve, 131-134, 162
Spinal-cord injury, 147, 149, 155-168, 192, 196-197, 231-234, 239, 270, 272, 308
from falls, 265
from an injection infection, 307
pressure sores, (see Pressure sores)
wheelchairs for, (see Wheelchairs)
Sports, (see Recreation)
Spring-bed, (see Bounce bed), 133
Sri Lanka, 119, 203, 325, 327
Stairs, setting up, 227, 230
Standing
activities for, 154, 208, 325
aids, 149, 154, 183, 320-327
thrusting hips forward, 16, 220
Standing boards and frames, 52, 69, 98, 149, 279
adjustable, 45
cardboard, 69
device for evaluating, 45
mud, 75
for walking (parapodium), 80, 220
Standing wheelchair, 183
Stanford, California, 236
Sterilization debate, catheters, 147
Stigma, 201
Stimulation,
lack of, 70, 334
through movement, 55, 133
toys for, 49, 290-291, (see Toys)
Strange behavior, 70
Street children, 2, 271, 279
Strength from weakness, 259
Stroke (cerebral vascular accident), 137-142, 278
anger with, 137-138
gait (walking) problems, 137-142
language problems, 137-138
leg braces for, 140-142
Strollers, 57, 59, 334
Stump care and exercise after amputation, 180-182
Stump-cast clamp, 113-116
Suggestions by reviewers for this book, 117, 181-182, 273
Suggestions For Information-Sharing in Print, 64, 181-182, 340
Suicide, 20, 241, 265, 282, 308
Survival first, 8-9
SUZANNE LEVINE, 20, 344
Swallowing trouble, 334
Sweating, loss of ability, 152
Swimming and therapy tank, 289
Swings, enclosed, 32, 57-58, 288, 318
paper-based, 74
rotary swing, 294

T

Tables,
for special seats, 30, 51-52, 55-56, 66-68, 74, 78-79, 179, 293
for wheelchairs, 30, 51-52, 63
TACHO, 294
Teasing, 269, 301
Technologies, (see specific kinds)
for appreciation and equality, 256
simple and complex, 172
soft and hard, 256
Teeter-tottor, ( see See-saws)
Tendon transplants, 97
TERE, 43, 104, 208, 211, 222, 228, 268
TERESA, girl with arthritis, 294
TERESA PAEZ, social worker, 311-312
Thailand, 54, 203, 288
Theater skits for awareness, 278, 286
Thigh band, 64
Third World, 155, 184, 192, 195
Thrasher Research Fund, 4
Tibial torsion, 101, 110, 325
TINÍN, 25, 40, 54-55
Tip-toeing, correction of, 93, 288
Tires, old, used for:
hand shoes, 175
playgrounds, 57-58, 289, 331
rocking horse, 331
seats, 57-58
swings, 57-58, 285, 289, 318
wheelchair wheels, 177-178
Tires, for wheelchairs, (see Wheelchair tires)
Toilets, 15
built into a walker, 213-214
inner-tubes for, 15
in trollies and wheelchairs, 15, 192-194, 213
wooden portable, 212
Toilet training, 212-215
Tomás Magallanes, 161, photo p.81
TOÑO, 23, 47, 292
Tools, home made, 174, 206
Torsion cables (twist hoses), 110, 325
Toy making shop, 272, 290-292, 308, 322
Toys, 290-292
for better hand control, 290-291
hanging from overhead bar, 39-40, 49, 55-56, 134, 291, 335
for stimulation, 49, 290-291
Traction problems and solutions, 18, 183, 186, 202-203, 223-226, 233-234, 343
Traditional village for rehab training, 231
Training manuals, 11, 13, 339, 343-344
Training workshops
Angola, 173 (see Chapter 29)
Brazil, 162, 164, 333 (see Chapter 50)
India, 231
Mexico, 4, 296
Nicaragua, 295
Transfer board, 168
Transfer seat, (see jump seat), 192
Transfers,
assisted, 153-154
to bed, or wheelchair, 151, 192
wheelchair to walker, 210, 213
Transportation, 170, 172, 199
Trash, (see Garbage), 173
Trays, non-spill, 135-136
Tree planting project, 312
Triangle for gripping, on rope, 243, 251
Tricycle, hand-powered, 199-206
automatic steering, 234
examples, 202-203, 225, 233, 243
for good traction, 202, 233-234, 343
lever-powered, 199-203, 255
motorized, 172
for narrow trials, 206
strengths and weaknesses of, 200
with trailer (cart), 201
"Tricycle Production Manual," 204
Tricycle-Wheelchair, convertible, 205
Trolley (wheeled bed), 15, 19, 78, 194, 241 (see also Gurneys, Scooters)
Trouble-shooting faulty seating, 163
Trunk (body) control, checking, 37
Tuberculosis of the spine, 238
Turtles, campaign to protect, 313
Twist-hoses, torsion cables, 109-111, 325

U

UN Economic and Social Commission for Asia and the Pacific (ESCAP), 19
UN workshop, "Indigenous Assistive Devices," 231
Unemployment, 267, 276
UNICEF, 273
United Nations, 121, 249, 261, 267
Urinals, on gurneys, 197-198, 238
Urinary infection, 130, 147-154, 197, 235, 239, 248, 282
chain of causes, 153
leg splints for, 149
prevention, 147-148, 152-154, 197
standing post for, 149
Urine and bowel control, 198, 238, 296, 307, 310
USA, 4, 188, 203, 236, 267
harm caused by US embargo, 184

V

VANIA, and JÉSICA, 307-310
Vania cares for a donkey, 309
Varus deformities, 86, 97, 105 (see Club feet)
Velcro (self-sticking tape), 43, 101, 143, 193
VICTOR, the doctor, 282
VICTOR, the teacher, 312-316
Video film-making, 280
Vietnam, 203
Village health workers, 21, 256
Violence, 2-3, 70, 180, 236, 267-268, 308
causes of, 2-3, 236, 260, 267
as a cause of disability, 2-3, 165, 173, 178, 197, 235, 253, 260-261, 267, 271
land mines, 173, 178
by soldiers and police, 260-261
Visual disability, 47, 207, 211, 262, 296-299
aids for, 298-299
bulletBraille, finger reading, 5, 295, 299, 313
bulletextra-big notebook, 298
bulletmagnifying glass, 298
bullettape recorder, 298-299
bulletwriting board with lines of string, 298
children's suggestions for helping, 298

W

Walkers (walking frames),
brakes for, ix, 53, 217
cardboard, 74
converts to crutches, 200, 219
with foot separator, 112
as a hand support for dressing, 36
harmful, 219
metal, folding, ix, 117, 209, 312
paper-based, 74
people as, 53
with a seat, 112, 210, 213-214, 219
with toilet built-in, 213-214
wheelchair as walker, 211
wooden, ix, 53, 80, 92, 100, 111, 210, 213-214, 217, 310
Walking
activities to start, or to improve, 48, 52, 216, 320-321, 325-327
problems, 81-112, 139, 142, 178, 216
toilet in walker, 213-214
with spinal-cord injury, 16, 231
Walking aids, 80-81, 207-211, 216-219, (also see Braces; Crutches; Walkers)
cane, 139
rope, 218
stick, 3-legged, 174
War on Drugs, 260
Water
need to drink lots, 152-154, 197, 247
therapy, 207, 289
Weakness, progressive, 77, 83, 311, (also see Muscular dystrophy, Multiple sclerosis)
Weight shifting to prevent sores, 165
Welding service and repair, 259
Wheelchairs, 15-19, 169 (see Part 4), 183-196,
accessibility, 170, 172, 227, 230-231, 277
adapting for different situations, 14-19, 170-171, 192-194, 231
adjustable seat-tilt, 50
adjustable width, 17, 190
for amputees, 189
armrests, 60, (see also Armrests)
backrest to prevent sores, 196
bearings, 188, (see also Bearings)
cushions, 156-157, (see also Cushions)
dancing, 300
disabled designers, 4-5, 183, 253-254
E&J (Everest & Jennings), 183
electric (motor), 172
folding mechanism, 189-191
foot-rests, 189, 210, 236
four-wheel drive, 183
front-wheel drive, 51, 183, 221-226
hand-rims, 221
hubs, adjustable, 189
jump-step for, 192
liberating, 26, 85, 170
low-riders, 15, 19
mountain-climbing in, 145
mudguard, 59
need for, 185
one-hand drive, 249-250, 253-254
races, 300
for rough terrain, 18, 183-187
seating-inserts, 30, 61-63, 335
for standing, 149, 183
tables, 31, 50-51, 63
tires, 178, 186-187
to hold two children at once, 171
toilets, 192-194
too big, 14, 41, 171
traction, problems with, (see Traction)
trailer for, 284
transport of, 170, 172
upholstery, 191, 237
wheels, (see Wheels)
Whirlwind (Torbellino), 183-198, 236
wooden, 78, 178, 302, 304
Wheeled cot, (see also Gurney; Trolley)
Wheeled mobility, 185, (also see Gurney, Trolley, Scooter, Wheelchairs)
simple and complex, 172
Wheelies (balancing wheelchair on 2 wheels), 26, 108, 226, 300
Wheels, 175, 186
all rubber (Zimbabwe wheel), 187
caster wheels, 183, 185
Ezekiel, 183
molded aluminum, 186
from old truck bearings, 174
for rough terrain, 183, 186, 343
sheet metal, 187
spoking, 195
wooden, ix, 174-178, 186, 195
Wheels of Fortune, 14-15
"Where There Is No Doctor," 339
"Which Is More Appropriate?" - a story, 172
Whirlwind Wheelchair, 183-196, 198, 236
design problems, 186-190, 236
WHO (World Health Organization), 6, 10, 265, 342
Wisdom of a child, 328
Wobble factor, 135
Women's liberation, rights, 265-266
Wood-working shop, 279
Work by disabled persons, 275-284
by blind persons, 275
building bamboo blinds, 276
carpentry, woodwork, 40, 53, 78, 176-179, 212-214, 245, 275-276, 279, 293
cattle raising, 232
chair-weaving, 277
collecting scrap metal, 199
dentistry, 256
and dignity, 201
farm work and gardening, 231, 275
flowers from fish scales, 312
folding gauze, 150
food selling on street, 199
hand-sewn crafts, 315-316
hauling water, 275
health services, 282, 307, 309
income-generation at PROJIMO, 276
laundry, 129, 150, 277
leather belts, 276
in the non-formal economy, 275-282
ornaments and crafts, 276
painting pictures, cards, 194, 313-314
playground clean-up, 284
pottery, 255
pump repair, 281
rice farming, 232
running a village store, 338
in rural and urban areas, 275-276
sandals and shoes, 276
social work, 261
sugar-cane milling, 232
sweeping, 150, 325
teaching English or Spanish, 282, 315
as therapy, 150
toy and puzzle making, 276, 290-292, (see Toys; Puzzles)
washing and hanging up clothes, 129, 150, 277
washing dishes, 150, 277
weaving plastic chairs, 276-277
weaving rugs, 276
welding service and repair, 259
wheelchair building, 235
white-washing walls, 274
Work and play, 283-284
Work picnics, 312
Workshops, 4, 6, 173, 231, 295-296, 333, 341, (see Training workshops)
Wrestling, 329
Writing aids, 143-144, 146, 165, 298-299

X, Y, Z

YURI, 131-134
Zimbabwe, 4, 65, 73, 187
Zimbabwe (all rubber) wheel, 187
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